Aside from the personal aspect of wanting to complete this challenge, I want to take this opportunity to support a cause that means an awful lot to me and many of my friends – that is the fight to End Duchenne in Ten.  Duchenne Muscular Dystrophy (DMD) is one of the most common fatal genetic disorders to affect children around the world and the condition is terminal, with death usually occurring before 30.  I have seen first-hand the devastation this condition causes to the kids and their families who suffer with Duchenne, with a personal friend’s son Felix being diagnosed in 2013.

I have also seen the incredible strength, courage and determination that these kids and their families show in the face of a currently incurable disease.  These families have worked together, formed charities, taken their cause to Government, raised millions of pounds and funded research and trials that would otherwise not have happened, thereby giving their children, their families and those who sadly will come after them with diagnosis the hope that a cure can be found.

Duchenne Muscular Dystrophy

Duchenne Muscular Dystrophy (DMD) is one of the most common fatal genetic disorders to affect children around the world.  The condition is terminal, and death usually occurs before 30 with 1 in every 3,500 boys worldwide are affected. 

I have seen first-hand the devastation this condition causes to the kids and their families who suffer with Duchenne, with a personal friend’s son Felix being diagnosed in 2013.

I have also seen first-hand the incredible strength, courage and determination that these kids and their families show in the face of a currently incurable disease.

Duchenne UK

Duchenne UK formed when Joining Jack and the Duchenne Children’s Trust joined forces.  These charities were formed by families of kids with Duchenne and they have worked together to raise millions of pounds to fund research and trials that would otherwise not have happened.  This not only gives hope for these kids but also those children and families who sadly will come after them with diagnosis of Duchenne.

Duchenne UK is the UK’s leanest Duchenne research charity, with a clear vision to fund and accelerate treatments and a cure for Duchenne Muscular Dystrophy (DMD), and to do so in a decade.  The goal is to END DUCHENNE IN TEN.

In the last 6 years Duchenne UK has raised over £10 million, with £6.5m spent on projects to date and a further £3.5m committed to accelerating research.

Team Felix

I am rowing for Team Felix, which is a partner fund of Duchenne UK and a cause that means an awful lot to me and many of my friends.  It was set up by friends Lisa and Karl Kuhwald after their son – Felix – was diagnosed with DMD in 2013.

You can find out more about the great work the charity does by reading their latest Impact Report here

Also, check out the latest video from the Duchenne Dash where you find out a bit more about the charity, the kids, their parents and supporters by clicking here